PDA (Pathological Demand Avoidance), Health and Ageing: Navigating Later Life

About this course

On completion of this course, a certificate will be provided with 1 hour Professional Development

PDA (Pathological Demand Avoidance), Health and Ageing: Navigating Later Life

As PDA adults grow older, new demands enter the picture: medical appointments, treatment plans, aged care systems, and a healthcare world built almost entirely around compliance. For someone whose nervous system reacts strongly to perceived loss of control, this stage of life can bring a whole new set of challenges, often without anyone around them recognising why.

Health and ageing services are rarely designed with PDA in mind. Appointment structures, treatment demands, and care planning processes can all trigger the same anxiety-driven avoidance seen at earlier life stages, only now the stakes around health and independence are higher.

This course looks specifically at what PDA means for health, ageing, and navigating medical and care systems, for the individual living it and for the families, carers, and health professionals supporting them.

Barb Cook, Registered Developmental Educator, researcher, and neurodivergent person, brings together research and lived experience to explore what genuine, autonomy-respecting support looks like in health and aged care settings.

What This Course Covers

  • Why healthcare and aged care systems can be particularly difficult for a PDA profile
  • How PDA can affect engagement with medical appointments, treatment, and care planning
  • Practical approaches for health professionals working with PDA patients or clients
  • Supporting autonomy and choice within necessary medical and care structures
  • What families and carers can do to reduce demand-related distress in health settings
  • Planning ahead for ageing in a way that respects a PDA person’s need for control

Who This Course Is For

  • Neurodivergent adults with a PDA profile, and their families
  • Carers and support workers involved in health or aged care
  • Allied health professionals, nurses, and medical practitioners
  • Aged care providers and planners
  • Anyone supporting a PDA person through health decisions or ageing

What You Will Gain

  • A clear understanding of why PDA can complicate healthcare and aged care engagement
  • Practical, autonomy-respecting strategies for health professionals and carers
  • Insight into supporting choice and control within necessary medical structures
  • A framework for planning ahead that respects a PDA person’s autonomy needs
  • Greater confidence navigating health systems for PDA individuals and their support networks


This is the fourth and final part of the PDA series. Each course stands alone, so you’re welcome to complete just this one or mix and match across the series to suit your needs.

This training course may be claimable for Self & Plan Managed NDIS Participants. Please check with your plan manager/LAC.


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Course curriculum

    1. PDA (Pathological Demand Avoidance), Health and Ageing: Navigating Later Life

    2. Presentation Slides

    3. Recommended Readings (Books)

    4. Website Links

About this course

  • $35.00
  • 1 hour of video content
  • Certificate of Completion for 1 Hour Professional Development
  • 60 Days to complete course

Grow your knowledge, starting today

Additional Courses

About the Presenter

Barb Cook Girl Women Autism Workshop

Barb Cook, M.Aut.(Ed), Dip.HSc.(Nut)

Registered Developmental Educator | NDIS Registered Specialist Level Positive Behaviour Support Practitioner | Integrative Nutritionist 

Barb Cook is a registered Developmental Educator, past Deputy Chair of the Developmental Educators Australia Incorporated (DEAI), NDIS registered Specialist Level Positive Behaviour Support Practitioner, and an Integrative Nutritionist.

Barb was diagnosed with ADHD, autism and dyslexia 2009 bringing a lived experience perspective alongside her clinical and research practice. She is a highly committed advocate, writer, editor, and highly sought-after international speaker. She has made appearances on Australian radio and television, in newspapers and magazines, and in the SBS television documentary The Chameleons: Women with Autism.

Barb holds a Master of Autism degree (education) from the University of Wollongong where she was also a researcher and co-project lead in the area of self-determination and self-advocacy for autistic teens and adults.

Barb takes a holistic approach in working with autistic/ADHD people and is dedicated to improving the overall well-being and quality of life for autistic, ADHD and dyslexic people. She is currently engaged in multiple research projects in the USA including a five year study on A Comparison of Two Brief Suicide Prevention Interventions Tailored for Youth on the Autism Spectrum, Comparing Cognitive-Behavioural Therapy versus Mindfulness-Based Therapy for Autistic Adults, and autism and ageing. 

Barb is internationally recognised for her bestselling book on autism in women, Spectrum Women: Walking to the Beat of Autism with Dr Michelle Garnett, filling the gap in literature between lived experience of autistic women and the clinical knowledge. Barb’s second best-selling book co-authored with Yenn Purkis, The Autism and Neurodiversity Self-Advocacy Handbook: Developing Skills to Determine Your Own Future, is an essential guidebook that gives you the tools and strategies to advocate for yourself in any situation, developing your skills in standing up for yourself, your needs and wishes. Barb's third book, Planning Your Career Through Intense Interests is focused on assisting young autistic adults in navigating careers pathways.

Barb is founder of Spectrum Women Magazine and is a prolific writer on autism, ADHD and health and wellbeing.

Barb is a highly sought-after international speaker and presents on a variety of topics. Barb spoke at the World Autism Organisation Congress 2018 in Houston Texas, in 2019 she was invited by the United States government to keynote a special event “A Woman’s Voice: Understanding Autistic Needs” for the National Institute of Mental Health (NIHM) in Washington DC, USA and 2024 spoke with Dr Temple Grandin, Dr Rebecca Evanko and Taylor Heaton in Albuquerque, New Mexico USA at AutFest on autistic women.

Barb was awarded the “A Different Brilliant” award at the Aspect National Recognition Awards in Sydney and the Leadership Support Award from the Neurodiversity Academy in 2021. In 2017 she received a Special Commendation from Queensland’s Governor, his Excellency, Paul De Jersey for the Autism Queensland Creative Futures Awards.

Barb is a passionate motorcyclist and enjoys roller skating and rollerblading at an outdoor rink near her home, and riding her motorcycle which helps her practice self-care and effectively reduces anxiety and combats depression.

Visit www.neurodiversityhub.com/barb-cook/ and www.barbcook.com.au to learn more about Barb Cook.

Published research:

29 August 2024: Brief Report: Under-Identification of Symptomatic Menopause in Public-Insured Autistic People. Teal W. Benevides, Barb Cook, Laura G. Klinger, Kiley J. McLean, Gregory L. Wallace, Meghan E. Carey, Wei-Lin Lee, Jonas Ventimiglia, Lauren D. Schiff and Lindsay Shea. Journal of Autism and Developmental Disorders.  doi.org/10.1007/s10803-024-06516-x  https://link.springer.com/article/10.1007/s10803-024-06516-x

19 May 2020: Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project. Teal W Benevides, Stephen Shore, May-Lynn Andresen, Barb Cook, Steven S. Coughlin, Dena L Gassner, Becca Lory Hector, and Lisa Morgan. Sage Journals: Autism doi.org/10.1177/1362361320908410 https://journals.sagepub.com/doi/full/10.1177/1362361320908410

11 May 2020: Interventions to address health outcomes among autistic adults: A systematic review. Teal W. Benevides, Stephen Shore, May-Lynn Andresen, Reid Caplan, Barb Cook, Dena L Gassner, Jasmine M Erves, Taylor M Hazlewood, M Caroline King, Lisa Morgan, Lauren E Murphy, Yenn Purkis, Brigid Rankowski, Sarah M Rutledge, Savannah P Welch and Karl Wittig. Sage Journals: Autism. doi.org/10.1177/1362361320913664 https://journals.sagepub.com/doi/full/10.1177/1362361320913664